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1.
Parents of children waiting for a diagnostic assessment for autism spectrum disorder (ASD) experience distress and anxiety while they wait. The present small-scale study took place in a multi-disciplinary therapeutic service in Ireland for children with ASD and was run between April and September 2011. The first author, an educational psychologist on a multi-disciplinary team, designed a qualitative, three-staged study to look at ways of supporting parents of children on the waiting list for assessment. Focus group discussions were analysed using thematic content analysis to identify themes to facilitate the development and evaluation of a pilot parent education group. Findings suggested that the ASD “journey” begins when the disorder is first raised as a possibility. Parents want information about ASD and the diagnostic process at this point. Parents reported benefits from the pilot group through meeting professionals involved in assessment, being supported by other parents, and learning strategies to help their children. 相似文献
2.
In recent years, there has been increasing concern about the identification of and provision of appropriate services to children and adolescents who are deaf and hard of hearing (D/HH) and who have concomitant learning disabilities (LD). Although it is unclear just how many youths who are D/HH also might have educationally significant learning problems, results from limited survey research and clinical practice provide evidence that such a group exists and that a significant portion of the school-age population of children and adolescents who are D/HH comprise a subgroup of youths who have concomitant LD. The overriding interest of those who advocate the cause of children and adolescents who are D/HH with concomitant LD is in finding effective ways to help these youths acquire future academic competence and attain competent levels of psychosocial functioning and emotional well-being. With creative research efforts and efficacious approaches to psychoeducational practice, we can seize the opportunity to establish high-quality diagnostic and educational services for children and adolescents who are D/HH and who have accompanying LD and set the stage to optimize positive developmental, academic, vocational, social, and economic outcomes for these youths. 相似文献
3.
Necdet Karasu 《欧洲特需教育杂志》2013,28(3):358-369
Active participation of parents in every step of their children with special needs’ education is crucial, and it begins with the educational assessment of the children. The parents experience with the professionals who are responsible of assessing children’s abilities might be crucial for the services that will be provided for the children with disabilities. The Guidance and Research Centers (GRCs) of Turkey are the key organisations for the services for children with special needs. This study focused on identifying the experience of the parents at the GRCs and applied qualitative research principles. The findings showed that the parents have reflected both positive and negative experience, but the majority focused on negative experiences. It might be drawn out that GRCs must be improved from several perspectives. 相似文献
4.
Kathleen Tait Rafat Hussain 《International Journal of Disability, Development & Education》2017,64(3):328-344
Australian education service provision includes the delivery of quality educational programmes to rural and remote living children. However, according to their parents, many children with developmental disabilities (such as Down Syndrome and Autism Spectrum Disorders) who are living in rural country areas in New South Wales (NSW) still do not have access to an acceptable education programme. This study aimed to use quality of life factors via a family quality of life scale to explore 51 parents’ experience of educational service provision for their children with developmental disabilities in rural NSW. The results indicated that successful engagement with the school system is strongly affected by the views, assumptions, expertise and prejudices of teaching and care professionals. Further research into how local educational service providers may assist rural Australian families with a child with IDD in rural and remote locations is warranted. 相似文献
5.
The transition from primary to high school can be a challenging process for students with autism spectrum disorder (ASD). During this time, research-based practices like home–school collaboration are crucial in facilitating a smoother transition. However, existing research indicates that the transition from primary to high school is a period of anxiety and reduced support for students with ASD and their families. This article describes the experiences of parents of students with ASD in regard to this transition and home–school collaboration. Semi-structured interviews were carried out with 15 parents of children with ASD who attended mainstream government high schools in metropolitan Sydney. Through content analysis, parents were found to have received varying levels of transition support. Their experiences of home–school collaboration were, however, generally positive. Overall, it is recommended that parents’ knowledge of their children with ASD should be prioritised and utilised in transition planning. Findings also suggest that a greater implementation of practices including mandated transition planning and home–school collaboration in schools would contribute to more authentic inclusion of students with ASD. 相似文献
6.
The federal requirement to develop an Individual Family Service Plan (IFSP) for all infants and toddlers with special needs has a major conceptual difficulty that has, to date, been inadequately addressed in the literature. That problem stems from the linkage of family service to family assessment. Many authorities, attracted to parental “empowerment” theory, advocate that parents should be the authors rather than (or as well as) the objects of assessment, and that professionals and parents should be partners in assessing needs and planning services. When there is disagreement, professionals should defer to parents, who are in the best position to assess their own needs. We question the wisdom of conducting assessments with, or on, families of targeted children. But, if there are to be assessments, we argue that families are better served, and mutual respect better preserved, by a traditional complementary relationship: The professional controls the evaluation process, determines the problems (with the input of the family), and makes recommendations, which parents are then free to reject. 相似文献
7.
An increasing number of Child Protective Services (CPS) systems are implementing Differential Response (DR) approaches in which lower-risk families are served through a family assessment response that emphasizes a family centered approach and the provision of concrete and preventative services. Quantitative survey data collected from parents suggests that those who receive family assessments are more engaged, receive more concrete services, and have higher overall satisfaction than those who receive a traditional investigation; yet little is known about which services provided through a family assessment are most helpful to parents. This qualitative study sought input from 20 parents who received a DR family assessment response in order to provide an in-depth analysis of which aspects of their CPS experience they perceived as most helpful. Results suggest that a positive and emotionally supportive relationship with the caseworker was of utmost significance. Other caseworker-provided services were described as helpful, particularly those that helped parents establish or improve relationships with others, including advocacy with other service providers, mediation of family disagreements, and coaching on parenting or relationship skills. Material support, such as providing cash assistance for rent or furniture, was helpful when received but occurred less frequently and was sometimes a source of frustration when accompanied by lengthy waits for assistance. These findings have implications for CPS practice, including enhancing caseworkers’ relationship-building and engagement skills through pre-service educational coursework and in-service trainings; allowing caseworkers adequate time to develop supportive relationships with parents; and reducing the institutional barriers that delay the provision of concrete support. 相似文献
8.
Rose E. Huff Beth M. Houskamp Alice V. Watkins Mark Stanton Bethany Tavegia 《Roeper Review》2013,35(4):215-221
This study documents the experiences of parents raising African American children who have been identified as gifted. There is a small but growing body of research exploring the experiences and issues of gifted African American children. Parents play the most significant role in a child's development; however, parents of gifted African American children are not currently represented in the literature. This study utilized semi‐structured interviews with the parent or parents from 12 families to explore their experiences of rearing their gifted African American children. Particular attention was addressed to issues surrounding their children's academic and social experiences, including interactions with school, family, and community. Implications are elucidated for individuals working with this population, and suggestions for future research are provided. 相似文献
9.
Chi-Wen Chien Sylvia Rodger Jodie Copley 《International Journal of Disability, Development & Education》2017,64(5):483-496
Children with developmental disabilities are at risk for limited participation in everyday activities. This study investigated factors that hindered or facilitated participation in 58 children with moderate-to-severe developmental disabilities who attended special schools. The parents completed surveys on their children’s participation, developmental profile, environmental restrictions, parental self-efficacy and family demographics. Multiple regression analyses indicated that four variables were identified as strong predictors of specific children’s participation and, overall, explained a small-to-moderate magnitude of variance. Social-emotional ability was associated positively with all aspects of children’s participation (including diversity, intensity and enjoyment). Children with better communication and those who had only one sibling engaged in a higher number of activities and did so more frequently. The children of parents with higher self-efficacy enjoyed themselves more during participation. The findings provide preliminary information that could be useful for families and health care professionals to facilitate participation of children with moderate-to-severe developmental disabilities. 相似文献
10.
Research studies have shown the importance of early intervention services for young children with autism spectrum disorders
(ASD) and their families. However, most attention has been given to the effectiveness of treatments solely for children with
ASDs. Because the family centered practice has been emphasized and supported by many researchers and legislation, involving
family members other than children with ASDs and their parents in the assessing, planning, and implementing interventions
is seen as crucial. The purpose of this article is to review what sibling relationships look like for a typically developing
sibling of a child with an ASD and what resources are available for parents and specialists to support siblings of children
with ASDs. 相似文献
11.
A comparison of parent and professional perceptions of children with autism spectrum disorder in Portugal 
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下载免费PDF全文 Improving early intervention in Portugal for children with autism spectrum disorder (ASD) requires parents and professionals to collaborate in assessing and planning intervention programmes. This article analyses parental and professional assessments of children with ASD, in the dimensions of social communication, repetitive behaviours and restricted interests, and sensory processing. The study presents contrasting perspectives from professionals and parents from a range of socio‐academic backgrounds. The sample consists of 136 Portuguese children (aged three to six years old) with ASD and involves children, parents and professionals from across the country. All children, at the time, were in preschool and receiving early special education intervention. Parents and professionals used the Assessment Scale for Children with ASD to complete the assessments. The results show that parents rate children's development and learning more positively compared to professionals; and that this difference is more significant in the field of social communication. Further, parents with higher academic qualifications showed statistically significant differences in comparison with professionals in the social communication dimension. These findings are discussed in relation to the literature and some suggestions are made regarding certain practices related to intervention in early childhood. 相似文献
12.
Starting school is a critical event in a child’s life and successful transitions to school have been posited as key indicators for future academic achievement. For children with autism spectrum disorder (ASD), the process is complicated by difficulties in social communication and social interaction. Parents of children with ASD can experience their child’s transition to school as a stressful and challenging time. In this study a qualitative methodology, Interpretative Phenomenological Analysis (IPA), was used to elicit the experiences and perceptions of six parents whose children with ASD were starting school in Ireland. Semi-structured interviews were carried out and a cross-case analysis was conducted. Three common overarching themes were identified which reflected participants’ experiences of the transition process; these were (a) “I think they need to believe, believe what we’re telling them”, (b) “Experience of ASD/it’s a very labelling thing”, and (c) “Preparing for school and feelings about the future”. Implications from the research are discussed with reference to the role of the educational psychologist (EP) in supporting parents of children with ASD in the transition process. 相似文献
13.
14.
The focus of the study was to explore parental experiences of raising a child with autistic spectrum disorder (ASD). A mixed‐method approach consisting of questionnaires and semi‐structured interviews was used in order to elicit parental perspectives of raising a child with ASD. Two semi‐structured interviews were conducted with parents of children with ASD. Questionnaires were sent to parents of children with ASD in two special schools. The findings indicate that although each of the parents had a child with ASD, their experiences were all different. Many interesting accounts were documented and a wealth of information regarding the characteristic traits that children with ASD portray was recorded. The findings suggested that the majority of the parents experienced a low level of support from agencies and professionals. The general verdict was that of poor communication and a lack of understanding of parents' needs following formal diagnosis. Finally, a series of coping strategies were discovered ranging from family support to paid help. 相似文献
15.
Richard P. Hastings 《International Journal of Disability, Development & Education》1997,44(4):329-340
Grandparents are important sources of support to children with disabilities and their families. However, there has been very little published research concerned with grandparents’ roles and experiences in relation to their grandchild with disabilities. Existing research is reviewed in the present paper. Although both parents and grandparents themselves report a wide range of supportive activities and increased involvement with the child with disabilities, grandparents may also be an additional burden to families. In particular, parents may find it difficult to deal with grandparents’ immediate and longer term emotional responses to their grandchild's disability. Clinical, educational, and other professionals have an important role to play working with grandparents and facilitating their role as a resource for families of children with disabilities. The implications of the review for research on grandparents are also discussed. 相似文献
16.
Childhood epilepsy is the most common paediatric neurological disorder. It is a condition with a well-documented association with cognitive, behavioural and emotional difficulties. Children with epilepsy are at increased risk of global and specific cognitive impairments. They are also at increased risk for symptoms associated with attention deficit hyperactivity disorder (ADHD), autism spectrum disorder (ASD), depression and anxiety. The cognitive, behavioural and emotional difficulties associated with childhood epilepsy are often overshadowed by the need to treat epileptic seizures. Psychologists working in schools can provide valuable insight into the cognitive, behavioural and emotional issues faced by children with epilepsy through appropriate assessment and the recommendation of interventions which will lessen the impact of such difficulties. Educational psychologists can also help the children’s families cope with a condition with challenging psychosocial implications and provide a valuable link between school staff and supporting health professionals. 相似文献
17.
The transition to kindergarten is a critical milestone in children’s lives, with implications for academic and future life success. The demographic family/parental variables of residence, social class, and race have been associated with children’s adjustment to kindergarten. In particular, children growing up in families from urban, low-income African American backgrounds are at heighted risk for negative academic, cognitive, and socio-emotional outcomes as they transition to kindergarten. Relatively little inductive research exists on the kindergarten transition of this population and how families from urban, low-income African backgrounds positively support their children’s kindergarten adjustment. However, researchers using qualitative methods are increasingly examining the first-hand experiences of families from urban, low-income African American backgrounds to better understand family beliefs and practices that promote children’s successful kindergarten transition. Contributing to this gap in the literature, we utilized qualitative interviews informed by resilience theory to explore how 20 mothers from urban, low-income African American backgrounds facilitated their Head Start preschoolers’ transition to kindergarten. We found that, despite possessing parental/family risk factors associated with ineffective kindergarten transitions, mothers monitored and assessed their children’s academic and socio-emotional school readiness abilities, promoting readiness competencies while addressing readiness weaknesses. One of the ways that mothers supported children’s transition readiness was through one-on-one conversations with preschoolers. Our findings provide recommendations for effective home–school collaborations that support children’s successful kindergarten transition. Collaborating with engaged and motivated parents, Head Start can assist families and children prior to kindergarten and continue to serve as a link between families and children and elementary schools. 相似文献
18.
Autism spectrum disorder (ASD) is the fastest growing group of neurodevelopmental disorders in childhood. Earlier detection means an increased need for early intervention and other educational services. This study examined what services a sample of young children with ASD received, what variables predicted service utilization, and how satisfied parents were with the services. Sixty children (2–7 years) and their families from the Northwestern United States participated in the study. Results suggest that, on average, children received 13 h of educational and therapeutic services per week, with younger children receiving fewer services than older children. Child age, atypical behavior, and family income predicted number of service hours received. Children’s adaptive behavior and autism symptoms did not predict service hours. Although services received were, by most standards, minimal and far below best practice recommendations, parents reported high satisfaction, especially for their toddlers and preschool-aged children. Implications and future directions are described. 相似文献
19.
Kevin J. Swick 《Early Childhood Education Journal》2010,38(4):299-304
By utilizing all of the voices of homeless children and families we can gain a better understanding of their needs and thus
be more effective in designing programs that can support them in becoming more independent. This article reviews the importance
of the voices of homeless preschool children and their parents as well that of the professionals who work with them in developing
responses to this problem. Strategies that empower homeless preschool children and their families are noted. These strategies
include: quality preschool care, therapeutic practices that empower the entire family, case management schemes that provide
support to homeless children and families, and societal changes that empower the family. Critical roles that early childhood
education professionals can carry out in this empowerment process are delineated and discussed. 相似文献
20.
Vicki Bitsika 《International Journal of Disability, Development & Education》2016,63(5):491-499
Depression is highly prevalent in children who have an Autism Spectrum Disorder (ASD), potentially confounding accurate diagnosis and treatment planning. Although information about the depressive status of a child is often collected from parents, there is evidence of distortion in parental assessments of their offspring’s depression. This distortion was investigated in a sample of 132 mothers of boys with an ASD. Results indicated that, as predicted from previous studies, there was a significant correlation between the depressive state of the mothers and the ratings they gave for their sons’ depression. However, in contradiction to the expected influence direction, mothers who were minimally depressed under-estimated their sons’ depression when cross-validated by structured clinical interviews for depression conducted by a third party, rather than mothers who were more severely depressed exaggerating their sons’ depression. Implications for clinical assessment of the presence of depression in boys with an ASD are discussed. 相似文献