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1.
Grandparents are important sources of support to children with disabilities and their families. However, there has been very little published research concerned with grandparents’ roles and experiences in relation to their grandchild with disabilities. Existing research is reviewed in the present paper. Although both parents and grandparents themselves report a wide range of supportive activities and increased involvement with the child with disabilities, grandparents may also be an additional burden to families. In particular, parents may find it difficult to deal with grandparents’ immediate and longer term emotional responses to their grandchild's disability. Clinical, educational, and other professionals have an important role to play working with grandparents and facilitating their role as a resource for families of children with disabilities. The implications of the review for research on grandparents are also discussed.  相似文献   

2.
ABSTRACT

In India, people with disabilities often struggle to access various opportunities and resources. As a result of perceptions within the Indian culture around disabilities, families may face social, financial, and emotional difficulties. Within the family, a child with a disability may lead to strained relationships, particularly with siblings. Often siblings have little knowledge about disabilities and may feel ostracised. The purpose of this exploratory study was to examine the knowledge and attitudes of 12 Indian children regarding their siblings with disabilities, including their perceptions about disabilities against the backdrop of societal attitudes. Participants were interviewed to understand their knowledge of their siblings’ disabilities, to examine their sibling relationships, and to assess how school and society influenced their perceptions about disabilities. Results from this study can help family members understand how disability shapes relationships between children. The findings also provide key stakeholders with information that might help them better support families.  相似文献   

3.
The results of previous research suggest that while preschool children have a beginning understanding of disabilities that involve the use of adaptive equipment, they have little awareness of disabilities such as Down syndrome which have less overt distinguishing characteristics. In this study, videotaped segments from the children's television show, Sesame Street, were used to explore children's ideas about Down syndrome and physical disability. Participants included 41 preschool children. While a majority of participating children were aware that each child in the videotapes had some difficulties performing age-appropriate tasks, children had significantly fewer ideas about why the child with Down syndrome had this difficulty. Significantly more thought that the child with Down syndrome could do more "if he tried really hard" when compared with the child with a physical disability. These results are discussed in terms of children's developing understanding of disabilities and implications for using media to teach preschoolers about people with disabilities.  相似文献   

4.
The main purpose of this study is to examine whether fathers' involvement with their child with disabilities is correlated with some of the demographic variables. Data were collected from 243 Polish fathers who were married and who had at least one child with disabilities. The issue was assessed by two measures: a Questionnaire and the Father Involvement Scale. The results of the multiple regression show that fathers' involvement is significantly (P < 0.05) correlated with the level of fathers' concentration on the needs of their child with disabilities, the level of fathers' cooperation with their wives, the number of years during which parents cared for a child with disabilities, time devoted by fathers daily for their child with disabilities, fathers' self‐esteem, fathers' education, the level of disability of a child, the level of fathers' skills in dealing with their child with disabilities and the level of fathers' knowledge about their child with disabilities. A video abstract of this article can be viewed at: http://youtu.be/XpTojch0j9Y  相似文献   

5.
Understanding children's decisions to include a child with a disability in activities is an important component of the social environment of children with disabilities. We examined preschool children's understanding of the motor and social competence of hypothetical children with a physical disability, children's decisions to include or exclude a peer with a physical disability in play activities, and children's justifications of their inclusion/exclusion decisions. Children understood that a peer with a physical disability would have more difficulty with activities requiring motor skills than social skills and were more likely to include a peer with a physical disability when the activities required minimal motor skills. The role of typically developing children's understanding of social contexts in peer relationships is discussed.  相似文献   

6.
ObjectiveThe study used a series of vignettes to investigate how the presence of three disabilities (cerebral palsy, intellectual disabilities, emotional/behavioral disabilities) affects the processes and outcomes of child abuse investigations at two levels of child injury severity (moderate, severe).MethodSeventy-five CPS case workers completed study surveys and answered questions in response to a series of eight vignettes.ResultsThis study revealed differences in the responses of CPS case workers when the alleged victim of physical abuse had a disability. Children with disabilities were more likely than children without disabilities to be seen as having characteristics that contributed to their abuse. Most CPS workers felt at least some empathy with abusive parents; empathy was highest when the children had emotional/behavioral disabilities. Services recommended for families of children with disabilities were more likely to be child-focused. Parent-focused services, such as individual counseling and adult anger management, were more likely to be recommended for families of children without disabilities. In general, differences among disability groups and between cases involving children with and without disabilities were more pronounced when the children's injuries were less severe. Even with more severe injuries, such as a concussion or broken bones, the CPS workers still responded differently depending on the disability status of the child victims.ConclusionsRecommendations are made concerning the utilization of investigation teams that include disability specialists and the need for further disability-related training for CPS case workers.Practice implicationsThere is a strong need for training related to disability, with an emphasis on attitudes as well as knowledge and skills. The training should include examples of healthy family functioning and positive aspects of parenting a child with a disability to counteract the prevailing perception of disability as a cause of chronic stress and dysfunction; identification of broader ecological contexts in which these families live, including social response to disability and the disability-related service system and; strategies for disentangling the signs of abuse from characteristics of the disability. Interdisciplinary teams should include members from disability-related fields to share expertise and increase communication between systems.  相似文献   

7.
Recognizing that parental adaptation to having a child with a disability is a life-long process that occurs within the context of the family's developmental life cycle, psychologists are becoming increasingly interested in life-cycle transitions and critical events of families with a child who is disabled. Professionals are just now beginning to examine systematically the potential for periodic changes in adaptation throughout a family's life cycle and ways in which professionals can support family members. This article reviews the literature regarding transitions and critical events that present challenges to families and the sources of support that families use during such times. Implications for providing support to families are discussed.  相似文献   

8.
This study examined young people's decision making on issues that affect their lives: bullying in different contexts (e.g., family, peer groups, school) and their involvement in evaluating the availability and effectiveness of support services (e.g., disability, care). Key aims of this study were to offer young people a platform to evaluate existing services and make recommendations towards their improvement, and to discuss ways of tackling bullying at school. Focus groups were formed with 54 young people who had experienced challenges due to bullying, learning difficulties/disabilities, and caring responsibilities for family members with disabling conditions, and discussions about services and decision making on issues that affect their lives were facilitated. The findings point to a sense of agency in young people's lives with regard to evaluating and negotiating services and offering suggestions for their improvement within their family and peers. However, in their view, their decisions regarding bullying exerted limited influence within the school context. These results raised interesting issues about young people's capacity to evaluate services and the contextual influences on their involvement in decision making.  相似文献   

9.
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10.
With the international trend towards individualised funding packages that allocate funds to individuals to spend on disability support needs, the challenge of ensuring parents can readily access useful information to make decisions becomes paramount. The present research used a two stage, mixed method sequential approach (with 291 parents surveyed and 56 parents participating in focus groups) to determine how parents acquire information to enhance their understanding of their child's disability and determine how to use an individualised funding scheme to benefit their child and family. Parents attested to the importance of person‐to‐person communication and valued information that originated from other parents of a child with a disability, and from professionals who knew their child. Parents also spoke about the limitations of the internet, noting that reliance on the internet could cause confusion as the validity of information could not be assured. Early childhood intervention services emerged as a key instrument in developing the capacity of families to make informed choices. Understanding families'’ perspectives on the utility of information sources is critical and timely as policy‐makers and service providers within the disability sector shift practice to meet the rise of individualised funding internationally.  相似文献   

11.
In Saudi Arabia, the majority of students with severe intellectual disabilities are still educated in special schools that do not meet their unique needs for interaction with their typically developing peers in public schools settings where they could improve social, communication and academic skills. One of the most significant obstacles to inclusion of this group of students is teachers' perspectives regarding inclusive education for this category of students. As a result, this study examined teachers' perspectives regarding the inclusion of students with severe intellectual disabilities using a quantitative approach. In addition, this study also examined the relationship between teachers' perspectives regarding the inclusion of students with severe intellectual disabilities and current teaching position, training, teacher's levels of education, previous teaching experience with any kind of disabilities in inclusive settings, grade level being taught, teacher's gender and whether they have a family member with a disability. Three hundred and three teachers responded to the Opinions Relative to inclusion of Students with Disabilities (ORI: Arabic version) survey, including 161 males and 139 females, and three non‐specified gender. A two‐way analysis of covariance (ANCOVA), a one‐way analysis of variance (ANOVA) and an independent t‐test were used to answer the research questions. The findings of the study indicate that teachers have slightly negative perspectives towards the inclusive education of students with severe intellectual disabilities. Significant factors regarding teachers' perspectives towards the inclusion of this group of students included their current teaching position, previous teaching experience with students who had any kind of disability in inclusive settings and the teacher's gender.  相似文献   

12.
This research lends insight into disabling discourses on South Asian families of children with disabilities. It explores immigrant Pakistani maternal understanding of their children's disability, uniquely through an educational perspective, highlighting maternal roles which schools must acknowledge to improve outcomes for children. The findings of this research, supported by a literature review, highlight various ideological threads shaping maternal understanding of disability and their children's schooling experiences. Data were collected through multiple case studies of immigrant Pakistani mothers of disabled children at Westchester School, incorporating semi‐structured interviews and reviewing pupils’ school files. After a process of open coding, the main themes emerging from interviews suggested maternal perceptions of disability evolved from a medicalised lens, onto identifying with structural barriers to children's progress, and a gendered lens. Both maternal perceptions and their professional interactions determined maternal accounts of their children's schooling experiences. This research highlights positive familial factors shaping maternal understanding of disability, supporting further studies into maternal advocacy and empowerment within UK special education.  相似文献   

13.
The purpose of the current study was to survey and interview caregivers of children with disabilities (ages 2–5 years) to obtain their input as to whether current playground equipment meets their child's needs. A total of 149 participants agreed to participate. Caregivers (i) indicated that their child with a disability could not fully participate in the playground's offerings, (ii) felt that the playground was not appropriate for their child with a disability and (iii) dreamed of a fully inclusive playground that met their child's needs. The results also demonstrate that social participation barriers continue to remain for families who have children with disabilities despite the passing of international human rights standards targeting individuals with disabilities and a global focus in improving the overall well‐being of children with disabilities.  相似文献   

14.
Ego integrity, the last developmental task in Erikson's psychological theory, develops naturally among older people. However, the presence of loss–like physical disability–can considerably affect the quality of life, interactions, and well being of older adults. Hence, older people with physical disabilities need more assistance in accomplishing tasks of ego integrity. This study aimed to utilize traditional Filipino art to capture the essence of the lived experiences of a select group of older people with physical disabilities in relation to their ego integrity. Four Filipino elderly with physical disabilities were purposely selected for this study. Picture prompting and doodling sessions were held as pretest and posttest to ascertain the effectiveness of puni-making in facilitating ego integrity of participants. A series of interviews were pursued to elicit experiences and feelings of participants regarding their disability and old age. From the analysis of the triangulated set of data, two findings emerged. First, four activators of ego integrity, namely: work, family, belief in self and belief in God, were identified as essentials in the formation of the participants' ego-integrity. Second, shifts related to the activators were identified indicating ego integrity's source, meaning and connection elements have become more grounded, certain and integrated. The influence of puni-making in understanding the ego integrity of older people with disabilities was found to be a sound and novel recreational therapy. It can stimulate a select group of Filipino elderly for openness to share their subjective and yet illuminating life experiences.  相似文献   

15.
Becoming the parent of a child diagnosed with learning disabilities can have a dramatic impact. Chrissie Rogers, the author of this article, is both a lecturer in education studies at Keele University and the mother of a daughter who has learning disabilities. She argues here that the pressures on mothers to produce 'perfect' babies and to meet all their needs are immense. These pressures arise from both internalised norms and societal expectations and, in the face of these pressures, parents may feel shock, loss and disappointment. These feelings may lead, in turn, to denial, anxiety and conflict affecting both the parents and the professionals involved with the family. Drawing on a series of in-depth interviews and personal narratives, Chrissie Rogers makes a powerful case for the importance of support, whether that support is formal or informal. She suggests that, without the right levels of support and understanding, having a child with a diagnosis of learning disability can disable the whole family.  相似文献   

16.
The belief that parent involvement in early intervention programs increases developmental benefits for children with disabilities and their families is widely accepted. However, very few studies have directly investigated the effects of parent involvement on child and/or family outcomes in a comparative design. For the present study, children in an early intervention program were randomly assigned to either of two groups. One group continued to receive the center- based program, and the other received the center-based program plus a specific parent involvement program. The type of parent involvement most frequently reported in the literature (White,Taylor, & Moss, 1992) was implemented. Weekly parent meetings for 15 weeks focused on teaching parents how to implement intervention at home, provided information on other topics, and facilitated social support. Assessment of child and family functioning took place prior to and immediately after the parent involvement program, as well as longitudinally over a four-year period. No immediate or long-term benefits for the children or their families were found. Findings are compared with findings of other studies. The implications of the findings in evaluating the rationales for this type of parent involvement program are discussed.  相似文献   

17.
The belief that parent involvement in early intervention programs increases developmental benefits for children with disabilities and their families is widely accepted. However, very few studies have directly investigated the effects of parent involvement on child and/or family outcomes in a comparative design. For the present study, children in an early intervention program were randomly assigned to either of two groups. One group continued to receive the center- based program, and the other received the center-based program plus a specific parent involvement program. The type of parent involvement most frequently reported in the literature (White,Taylor, & Moss, 1992) was implemented. Weekly parent meetings for 15 weeks focused on teaching parents how to implement intervention at home, provided information on other topics, and facilitated social support. Assessment of child and family functioning took place prior to and immediately after the parent involvement program, as well as longitudinally over a four-year period. No immediate or long-term benefits for the children or their families were found. Findings are compared with findings of other studies. The implications of the findings in evaluating the rationales for this type of parent involvement program are discussed.  相似文献   

18.
This study examined the influence of information about children's disabilities on preschool teachers' responses toward integrating children with disabilities in their classroom. Of particular interest was whether the severity of the child's educational needs and information about diagnosis were related to teachers' responses. Data were collected from 155 preschool teachers in two Midwest states in the United States to examine their responses in terms of levels of comfort, classroom adaptation, and need for support. Results showed that teachers responded differently to the types of disability regardless of the diagnostic labels; that is, teachers responded more positively to children with mild disabilities (e.g., children with Down syndrome) and those with physical disabilities (e.g., cerebral palsy). In addition, compared with children with diagnostic labels, teachers responded more positively to those with no diagnostic labels. Teachers' education and experience working with children with disabilities were associated with their levels of comfort. Implications and recommendations for service delivery and teacher training are discussed.  相似文献   

19.
This study, carried out by Bernadette Cairns, principal officer for Additional Support Needs and Early Education in the Highland Council Additional Support Needs Team, and Kirstie McClatchey, a research assistant in the Highland Council Psychological Service, explores children's attitudes towards disability, making a comparison between a school with a high number of pupils with additional support and complex needs where the philosophy was one of inclusion, and a school with few children with additional support needs. An opportunity sample of children (N = 82) in Scotland was obtained, and interview data were collected from pupils regarding video clips they had viewed of children with varying disabilities. Results found that children from the more inclusive school had a greater number of prior experiences of children with disabilities, made different suggestions for helping children with disabilities and had more positive attitudes towards having a pupil with disabilities in their own class. To conclude, these findings suggest that inclusion in schools may lead to a positive effect on children's acceptance and understanding of disabilities.  相似文献   

20.
In this article, Lynda Warren Dodd, who is senior educational psychologist for early years and the Portage Service supervisor in Stockport LEA, discusses the development of a support group for the brothers and sisters of young children with a wide range of disabilities. The group has been running, as an annual event, for eight years and offers a mix of socialising, games and group work. Through the group, the Portage Service aims to address some of the isues that emerge for families when there is a child with a disability. In order to evaluate the support offered to siblings, as well as to the child with special needs and their parents or carers, members of the Portage team gathered views from children and adults. Several key themes emerged from the comments made by children. All the participants enjoyed attending the sibling group. The children had varying degrees of understanding about their brothers' and sisters' disabilities. Some reported positive attitudes while others described the negative feelings they experienced in relation to their siblings' special needs. The parents also tended to value the sibling group and most of them asked for the provision to be extended. Lynda Dodd sets her account of this evaluation in the context of a constructive review of the literature on the sibling experience. She closes her article with a valuable summary of the implications of her work for future policy and practice in this important and often neglected area.  相似文献   

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