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1.
There are few support services for parents of children with a disability in Jordan. The present exploratory study investigated whether the provision of an education program in Jordan for mothers of children with Autism Spectrum Disorder increased mothers’ understanding of their child’s behaviour, improved the mothers’ coping skills, and reduced their stress levels. Following the education program, the mothers reported a statistically significant reduction in stress levels, an increase in coping skills, and an improvement in mother-child interaction. Compared to fathers, mothers’ stress levels were significantly higher and their coping skills were significantly lower. The outcomes have valuable implications for interventions for families with a child with ASD living in Jordan or in other Arabic countries.  相似文献   

2.
Most research into family care‐giving has been undertaken in western, English‐speaking societies with little cognisance taken of possible differences across cultures. Home‐based interviews were conducted with 117 mothers and fathers in Taipei City, Taiwan and five main themes were identified using content analysis. Three themes expressed the impact of the child on family functioning, parental health, and levels of stress and two themes described parents’ coping strategies and sources of support. Although these themes broadly replicate findings from other cultures, certain features of Taiwanese–Chinese society appear to accentuate the impact on mothers especially of having a child with an intellectual disability. The implications for the provision of family‐centred services are discussed, especially in helping parents to recognise their strengths and coping capabilities, and to promote their influence in changing cultural attitudes.  相似文献   

3.
The study examined conflict and facilitation in work–family relations among working mothers of children with learning disorders (LD) or with typical development. The study also focused on three maternal personal resources (maternal anxious/avoidant attachment security, affect and sense of coherence) as antecedents of these work–family relations, and examined outcomes of such conflict and facilitation between the two life domains, as they affected patterns of close relationships within the family (child attachment and family cohesion). The sample included 96 mother–child dyads: 48 mothers and their children with LD; and 48 mothers and their typically developing children. Children’s ages were 8–12 years. All attended public elementary schools in urban areas of central Israel. Significant group differences emerged on mothers’ family to work conflict and on mothers’ work to family facilitation. Findings indicated that several maternal personal resources were antecedents of these relations and also contributed to differences in mother–child attachment relationships and family cohesion. Discussion focused on understanding work–family relations among these mothers of children with LD, as well as the influence of maternal personal resources on patterns of close relationships (i.e., child attachment, family cohesion).  相似文献   

4.
The relation between parenting and the coping styles of children in response to everyday stress was investigated. 60 children, 9–10 years old, and their mothers participated. Children and mothers described how they responded to stressful episodes the child had experienced within the past 2 months. Mothers completed questionnaires that assessed a variety of parenting dimensions (e.g., nurturance, directiveness, organization). Results indicated that ( a ) the aspects of child coping studied (e.g., perceived effectiveness, variety of coping strategies) were relatively independent, ( b ) children from families with high levels of maternal support and relatively low levels of family structure used the greatest variety of coping strategies, ( c ) children of supportive mothers used the greatest number of avoidant strategies (but only in uncontrollable situations), and ( d ) children from families with high levels of parental structure used fewer aggressive coping strategies.  相似文献   

5.
This exploratory study investigates perceived levels of family stress for military families who have a young child with a disability. Two primary areas of study were the sources and levels of stress, and the benefits of resources designed to help families cope. Results of the study indicate an increased level of stress for families when the demands of military life were coupled with the demands of caring for a young child with a disability. Events such as separation from family members, relocation, deployment, and personal safety and health issues emerged as concerns of the military personnel. The importance of coordinating services for these families is discussed.  相似文献   

6.
The aim of this study was to assess the family climate as perceived by the mothers of families with a retarded child compared with ‘regular’ families; mothers of 67 moderately mentally retarded and 69 non‐disabled children participated. Mothers with a mentally retarded child perceived the climate of their families as not encouraging such intense relationships in the area of expressiveness or as much personal growth in the areas of independence and recreation orientation as the contrast families. Results are discussed in terms of the theoretical significance of prolonged crises for the well‐being of the family, and practical implications.  相似文献   

7.
BackgroundChildren exposed to intimate partner violence (IPV) are at increased risk of disruptions to their health and development. Few studies have explored mothers’ perceptions of what helps their children cope throughout this experience.ObjectiveThe aim of the study was to explore mothers’ perceptions of their children’s resilience and coping following IPV exposure, and the strategies they have used to support their children and promote resilience.MethodsIn depth semi-structured interviews were conducted with nine women from the Maternal Health Study (MHS), a prospective study of women during pregnancy and following the birth of their first child. All women involved in the qualitative interviews reported experiencing IPV during their involvement in the MHS. Transcribed interviews were analysed using interpretative phenomenological analysis which has a focus on how individuals make meaning of their experience.ResultsWomen discussed parenting strategies such as role modelling, stable and consistent parenting, and talking with their children about healthy relationships to promote their children’s resilience. Mothers also spoke about the ways they tried to reduce their child’s direct exposure to IPV, as well as reflecting on the difficulty of attending to their child emotionally when they were experiencing distress.ConclusionsThis study highlights that there are many strategies used by mothers who experience IPV to promote resilience and wellbeing in their children. Understanding what mothers see as useful for their children is essential in providing appropriate services to families following experiences of family violence.  相似文献   

8.
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9.
More than 90% of deaf children are born to hearing parents who experience stress, not only in respose to the initial diagnosis, but also in adapting to the unique needs of their deaf child. This article is a selective literature review summarizing information from three fields in order to broaden our understanding of family adaptation to deafness. Discussion includes (1) psychology's model of individual stress and coping (2) family science's model of family stress management, and (3) literature on family adjustment to disability. The last part of the article traces the development of professionals' understanding of the reciprocal influences between deaf children and their families and describes recent research indicating that the impact of deafness on families is complex and variable. The final conclusion is that adoption of a family stress and coping paradigm would inform discussion of current issues in deafness, such as cochlear implants and bilingualism/biculturalism.  相似文献   

10.
ABSTRACT

In India, people with disabilities often struggle to access various opportunities and resources. As a result of perceptions within the Indian culture around disabilities, families may face social, financial, and emotional difficulties. Within the family, a child with a disability may lead to strained relationships, particularly with siblings. Often siblings have little knowledge about disabilities and may feel ostracised. The purpose of this exploratory study was to examine the knowledge and attitudes of 12 Indian children regarding their siblings with disabilities, including their perceptions about disabilities against the backdrop of societal attitudes. Participants were interviewed to understand their knowledge of their siblings’ disabilities, to examine their sibling relationships, and to assess how school and society influenced their perceptions about disabilities. Results from this study can help family members understand how disability shapes relationships between children. The findings also provide key stakeholders with information that might help them better support families.  相似文献   

11.
Differences in infant outcome, predictor variables, and their relationships were explored as a function of maternal employment. Thirty 18-month-olds and their mothers were studied. Child intelligence, attachment security, and dependency were measured, as well as frequency of stressful events in the mother's life, quality of the parents' marital relationship, frequency of the mother's social contacts, and extent of the mother's emotional and parenting supports. Also included were the mother's ability to cope; satisfaction with emotional, parenting, and child care supports; and role satisfaction. For children of employed mothers, attachment and dependency were negatively correlated; securely attached children showed less dependency behavior. For employed mothers, satisfaction with child care and frequent social contacts predicted secure child attachment. Satisfaction with child care, role satisfaction, and ability to cope were strongly interrelated. For nonemployed mothers, maternal coping predicted attachment security, while frequent social contacts predicted greater child dependency. Predictors of child outcome were highly interrelated for nonemployed mothers, with satisfaction with emotional supports playing a pivotal role. These differences suggest that different models to predict infant outcome in employed and nonemployed mother families may be appropriate.  相似文献   

12.
Autism occupies a prominent place in scientific research both as a medical and as a socio-cultural phenomenon. Autism is studied as a disorder and a diagnostic label, as an experience of people with autism, their parents and their supporters, and finally as a disability related to stigma and rejection. The purpose of this article is to describe the posted experiences on personal blogs of five mothers who have school-aged children in the autistic spectrum in Greece. The qualitative method of content analysis is used for analysing the personal narratives across their blogs because this method focuses on describing and understanding the presented experiences and acknowledges the central role of the researcher in describing and signifying the issues discussed. The results of the content analysis show that the mothers seem to view autism through a developmental perspective and as they lead efforts for their child’s developmental timeline they are worried about their child’s developmental course and tend to experience high levels of anxiety, depression and burnout. The mothers act as practical scientists and co-therapists, taking an active role in educating and raising their children, finding a school and selecting appropriate interventions. The mothers struggle to obtain quality in education and services, while faced with the absence of technical infrastructure and understaffing in schools, lack of funding, covert or overt practices of acceptance and rejection of people with disabilities in the educational system, the attitudes and ignorance of some educators, and the high cost of private services. These mothers, at first, view autism as a tragedy and within their social environment they face covert or overt rejection since their children are stigmatised as “abnormal”. Later on, the mothers accept their child’s disability as a prerequisite for gaining a new life experience. It seems that the mothers have a mixed perception of disability, which sometimes tends to be closer to the medical model, sometimes to the hybrid model, while other times to the social model of disability.  相似文献   

13.
This study with families caring for an individual with an intellectual disability in a mid-sized Indian city explored the diverse explanatory models that parents constructed of causes, preferred treatment approaches and perceived social effects of their child’s intellectual disability. Seventeen mothers and three fathers rank ordered 48 disability related statements and participated in a qualitative interview. The intercorrelations and factor analysis of participant sorts helped to generate three parental explanatory models which were named religious resilience, in search of treatment and social change, and it is a burden to bear. The three models extracted 23%, 20% and 9% variance respectively. Interpretations based on factor arrays, consensus and differentiating statements, and qualitative interviews indicated that the first explanatory model utilised religion and spirituality to positively frame their child’s intellectual disability. The second explanatory model rejected religious notions and did not dwell on the cause of disability, but rather focused on optimal rehabilitation of individuals with an intellectual disability. The third model was characterised by maladaptive religious attributions and rehabilitation approaches.  相似文献   

14.
The role of parental stress in physically abusive families   总被引：3，自引：1，他引：3  
This study examines the role of several components of parental stress in physically abusive and nonabusive families with conduct-disordered children. The 123 families studied were seen in a parenting clinic aimed at improving parent-child interactions in families with a highly oppositional child. Data were collected over a several-week period and included both mother and father self-report measures and independent observations by trained researchers. Parental stress was found to play an important role in abusive families. Physically abusive families were significantly more often low income, had younger mothers with less education, more frequently reported a family history of child abuse, and were more likely to be abusing alcohol or drugs. Abusive mothers reported more stress due to frequent life events, and had a more negative perception of these events. Further, these mothers had higher rates of both depression and state anxiety. Abusive fathers spanked their children significantly more often than the nonabusive fathers, and abusive mothers had the highest frequency of critical statements directed at their children. Children from abusive households had significantly more behavior problems. Finally, abusive mothers reported more marital dissatisfaction and social isolation than their nonabusive counterparts.  相似文献   

15.
Forty‐five families with a child with Down syndrome and 88 comparison families provided information about their children's behaviour problems and their involvement in household tasks. In addition, parental stress was measured using the Parenting domain of the Parenting Stress Index (Abidin, 1990). There were no differences between the siblings of a child with Down syndrome and comparison children on mothers’ or fathers’ reports of problem behaviour. Siblings of a child with Down syndrome also did not differ in their contribution to family tasks, however, for the brothers of a child with Down syndrome there were significant negative correlations between household tasks and behaviour problems on fathers’ report. Parents of a child with Down syndrome reported more stress than comparison parents and stress was related to reports of problem behaviour for some parent groups.  相似文献   

16.
This study aimed to describe and categorize the attributes that parents of young children with cochlear implants (CIs) consider as facilitating their parental coping experience. I interviewed 15 hearing mothers and 13 hearing fathers (including 12 married couples) whose children had CIs, using the critical incident technique that asked parents to describe significant incidents (observable behaviors, thoughts, feelings) that facilitated their parenting experience. A total of 430 critical incidents were documented and sorted into 20 categories. Further analyses supported the suggested categorical system's validity and reliability. Results indicated various sources of influence on parents' coping experience, associated with social contextual aspects (e.g., professionals' support, sharing experience with others, family's/friends' consistent involvement, intervention services), with the parent himself or herself (e.g., taking action, personal resources, incorporating deafness into daily life), and with the child (e.g., child characteristics, identifying progress and success). The current research substantiates the soundness of implementing early intervention models such as the developmental system model (Guralnick, 2001) and the support approach to early intervention (McWilliam & Scott, 2001), which coincide with ecological theory and recognize that families need various combinations of resources, social support, information, and services to help them address the stressors associated with parenting in general and parenting a child with special needs in particular.  相似文献   

17.
This paper explores factors related to the use, amount and type of non-maternal child care infants experience in their first year, reporting on a prospective longitudinal study of 1201 families recruited from two different regions in England. The selection and timing of non-maternal child care was investigated within a socio-ecological model that took account of child and family characteristics as well as maternal psychological factors. Family socio-demographic background (education, occupation and income level) was the most consistent predictor of the amount and nature of non-maternal care infants received. Infants who started in non-maternal child care before the age of 3 months were more likely to come from relatively disadvantaged families; in contrast the mothers of infants starting in child care between 4 and 10 months were more advantaged. Disadvantaged families were more likely to use familial care, while more advantaged families were likely to use purchased child care. Children who began non-maternal care later (3–10 months) and spent more hours in care were more likely to be from ethnic minorities (Asian) and have mothers who believed that maternal employment had more benefits and fewer risks for their child. First born children were also more likely to experience non-maternal care after the age of 3 months. Infants rated by their mothers at 3 months as less ‘adaptable’ in temperament and at 10 months as more ‘fussy’ spent more hours in child care. Finally, the type of child care selected was related to the families’ socio-economic background, maternal beliefs and attitudes, and birth order. Findings are compared with the US large scale National Institute of Child Health and Human Development (NICHD) study and considered in the light of national policies.  相似文献   

18.
The number of parents undertaking an intensive home training programme of children with disabilities (e.g. Applied Behavioural Analysis) has increased. It reveals a paradox in current disability research and policies. On the one hand, policies in general are aimed at inclusion through movement of social barriers for participation, grounded in the social model of disability. On the other hand, intensive home training is based on the aim of rehabilitation through intensive training of individual cognitive and social skills, an approach grounded in a bio-medical model. Intensive home training programmes are supported by political legislation that enables parents to partake the training and hire the necessary helpers. How is this paradox viewed from the perspective of the parents? From the departure of the dialectical model of disability – and its central concepts of developmental incongruence, developmental time and social agency – two mothers practising home training with their children with autism disorder were interviewed about their motives for home training and subsequent experience with their child. Results showed that the motive to home training was to create a local congruence that allowed the child to thrive. Intensive home training also restored the mothers’ sense of agency vis-à-vis their child’s development. However, home training might not abolish the need for adaptations of the child’s social practices outside the family. It is discussed how societal support to home training risks to hinder higher order reorganisation of developmental opportunities that are necessary to actualise policy statements of inclusion.  相似文献   

19.
Early childhood is an important time for the development of resilience. A recently completed study has followed three cohorts of resilient children and young people living in disadvantaged areas in Victoria, Australia, through different transitions in their educational careers. This paper focuses on the early childhood cohort, where we have followed children from kindergarten/preschool into primary school. Using data gathered primarily through interviews with parents (mothers in each case), this paper presents a qualitative naturalistic sub-study that used deductive thematic analysis to explore the different strategies used by families to support their child’s resilience. Our findings highlight that resilience was a salient concept for all of the mothers in the study and each mother articulated a range of strategies they used within the family to try and support their child’s development and resilience. These strategies were constrained by the settings in which the families lived.  相似文献   

20.
OBJECTIVE: To examine the significance of neonatal risk factors from the individual, family, social, and parenting behavior domains of the ecological model of child maltreatment in predicting maltreatment reports in the first 4 years of life, and to examine the extent to which the interactions of life event stress and social support modify those risk factors. METHOD: Mothers of 708 predominantly at-risk infants were interviewed in their homes soon after their infants' discharge from the hospital. State child abuse and neglect central registry data were tracked every 6 months until the infants reached their fourth birthdays. RESULTS: The incidence of maltreatment reports was higher in households where the mothers were depressed, complained of psychosomatic symptoms, had not graduated from high school, consumed alcohol, participated in public income support programs, cared for more than one dependent child, or were separated from their own mothers at age 14 years (p < .1). In interaction models including these seven predisposing variables, there were significant interactions (p < .01) between social support, as measured by the social well-being index after the birth of the index child, and depression, and between social well-being and stress, as measured by an increase in total life events. CONCLUSION: Some predisposing risk factors measured soon after birth continue to be significant predictors of child maltreatment reports through the fourth year of life. In general, families with low levels of social support had a higher risk of a maltreatment report. For families with lower levels of maternal depression and/or life event stress, low social support significantly increased the risk of a maltreatment report by as much as a factor of four.  相似文献   

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