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1.
Emily Johnson Diane Dodd-McCue Alexander Tartaglia Jennifer McDaniel 《Journal of the Medical Library Association》2013,101(3):199-204
Objective:
This study examined citation patterns and indexing coverage from 2008 to 2010 to determine (1) the core literature of health care chaplaincy and (2) the resources providing optimum coverage for the literature.Methods:
Citations from three source journals (2008–2010 inclusive) were collected and analyzed according to the protocol created for the Mapping the Literature of Allied Health Professions Project. An analysis of indexing coverage by five databases was conducted. A secondary analysis of self-citations by source journals was also conducted.Results:
The 3 source journals—Chaplaincy Today, the Journal of Health Care Chaplaincy, and the Journal of Pastoral Care and Counseling—ranked as the top 3 journals in Zone 1 and provided the highest number of most frequently cited articles for health care chaplaincy. Additional journals that appeared in this highly productive zone covered the disciplines of medicine, psychology, nursing, and religion, which were also represented in the Zones 2 and 3 journals. None of the databases provided complete coverage for the core journals; however, MEDLINE provided the most comprehensive coverage for journals in Zones 1 and 2, followed by Academic Search Complete, CINAHL, PsycINFO, and ATLA. Self-citations for the source journals ranged from 9% to 16%.Conclusions:
Health care chaplaincy draws from a diverse body of inter-professional literature. Libraries wishing to provide access to journal literature to support health care chaplaincy at their institutions will be best able to do this by subscribing to databases and journals that cover medical, psychological, nursing, and religion- or spirituality-focused disciplines.Highlights
- Health care chaplaincy is a broadly inter-professional field that draws from and contributes to medical, nursing, psychological, and religion or spirituality literature.
- Two of the three source journals were sponsored by professional chaplaincy organizations.
- Journals and books were cited with almost equal frequency.
Implications
- For full coverage of the health care chaplaincy literature, librarians should consider searching in databases beyond MEDLINE, for example, CINAHL and Academic Search Complete, to assure comprehensive coverage.
- Health care chaplaincy researchers and educators considering publication will find the study useful for identifying relevant journals from related disciplines.
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Objectives:
The study updates Schloman''s 1997 study, “Mapping the Literature of Health Education.” The authors identify an updated list of core health education journals and determine the coverage of these journals by electronic indexes.Methods:
Citations from four source journals for the years 2006 to 2008 were analyzed using the established methodology of the “Mapping the Literature of Allied Health Project.” The cited journals were divided into three zones of productivity by using Bradford''s Law of Scattering.Results:
There were 19,907 citations in 602 source articles. Journal articles were the most commonly cited format type. Of the 1,896 journal titles cited, 20 (1.1%) made up the core journals. Together, the fields of medicine, health education, and psychology accounted for 85.0% of the journals in the core. Self-citation was found to be a common practice in the source journals. Scopus had the broadest journal coverage of the indexes examined.Conclusions:
The results of this study provide a new picture of the health education literature: The volume has grown significantly, cites older materials, and relies less on sexual health journals and more on psychology journals.Highlights
- Three of the four health education journals in this study showed a statistically significant increase in the number of journal articles published since 1993.
- The majority of core journals in the field are from medicine (35.0%), health education (30.0%), and psychology (20.0%), with the largest change in core journal make-up being an increase in psychology journals.
- Scopus provided the most thorough coverage of the cited journals, followed by MEDLINE, Social Sciences Citation Index, and CINAHL Plus with Full Text.
Implications
- Reference librarians should instruct users on more sophisticated ways to manage the growing volume of the health education literature.
- Collection development librarians may need to purchase and retain older materials to support health education research.
- Librarians should purchase and direct patrons to a variety of databases to completely cover the literature of medicine, health education, and psychology.
4.
Ana G Ugaz 《Journal of the Medical Library Association》2011,99(2):145-152
Objective:
The paper analyzes the journal evaluation criteria used to create the third edition of a core list of veterinary serials to determine the impact of each criterion on the final composition of the list in order to assess the value of using multiple criteria in creating a core list.Methods:
Three additional lists were generated from criteria that were previously combined to prepare the third edition of the “Basic List of Veterinary Medical Serials”: a list based on journal recommendations from veterinary specialty organizations, another list based on journals selected by veterinary librarians, and a list based on both indexing coverage and scholarly rank. The top fifteen journals in each of the three lists were then compared to reveal potential biases. Subject representation on the full lists generated by each of these methods was also compared.Results:
The list based on journal recommendations from veterinary specialty organizations exhibited a focus on clinically relevant titles. The list based on veterinary librarian recommendations resulted in the broadest subject coverage. The list based on indexing and scholarly rank, while emphasizing research titles, produced the largest number of unique titles.Conclusion:
A combination approach that includes objective evaluation measures and practical input, whether from librarians or discipline experts, can improve coverage and can result in a list that balances research-based with clinical practice journals.Highlights
- Analysis of criteria used to create the “Basic List of Veterinary Medical Serials” reveals biases inherent in different quality measures that result in different journal emphases.
- Use of indexing or scholarly rank is often thought of as a limiting factor, but in this study, the journals that were scored solely on these two criteria resulted in the inclusion of the greatest number of unique titles.
- Librarian input produced the broadest subject coverage of any list.
Implications
- An analysis of the strengths and weaknesses of various methodologies reveals clear evidence for using both objective and subjective criteria in developing a core list. Collection development decisions would equally benefit from this approach.
- Comparison of the top titles on core lists underscores the value of input from practitioners or discipline experts in collection decisions.
- Bias toward clinical content revealed in the input from the veterinary specialty organizations indicates the importance of understanding the purpose and compilation methods used in creating recommended lists before using them in collection development.
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Ana G Ugaz C. Trenton Boyd Vicki F Croft Esther E Carrigan Katherine M Anderson 《Journal of the Medical Library Association》2010,98(4):282-292
Objective:
This paper presents the methods and results of a study designed to produce the third edition of the “Basic List of Veterinary Medical Serials,” which was established by the Veterinary Medical Libraries Section in 1976 and last updated in 1986.Methods:
A set of 238 titles were evaluated using a decision matrix in order to systematically assign points for both objective and subjective criteria and determine an overall score for each journal. Criteria included: coverage in four major indexes, scholarly impact rank as tracked in two sources, identification as a recommended journal in preparing for specialty board examinations, and a veterinary librarian survey rating.Results:
Of the 238 titles considered, a minimum scoring threshold determined the 123 (52%) journals that constituted the final list. The 36 subject categories represented on the list include general and specialty disciplines in veterinary medicine. A ranked list of journals and a list by subject category were produced.Conclusion:
Serials appearing on the third edition of the “Basic List of Veterinary Medical Serials” met expanded objective measures of quality and impact as well as subjective perceptions of value by both librarians and veterinary practitioners.Highlights
- The 123 journals on the “Basic List of Veterinary Medical Serials” include 117 journals with a decision matrix score of 15 points or higher, with an additional 6 journals included for more complete subject representation.
- Subject categories with the greatest number of journals are internal medicine, food animal medicine, and research.
- Updates for the third edition of the “Basic List” include 59 new titles and 13 new subject categories.
Implications
- The third edition of the “Basic List” provides a useful collection development and assessment tool for veterinary libraries, as well as general libraries with a need to develop a core collection of veterinary resources.
- The decision matrix approach, using standard quantitative and focused qualitative measures, provides a useful methodology for creating core lists in other disciplines.
6.
Melissa L. Rethlefsen Alicia A. Livinski 《Journal of the Medical Library Association》2013,101(1):55-62
Objectives:
The research identified the publication types and ages most frequently cited in the infectious diseases literature and the most commonly cited journals.Methods:
From 2008–2010, 5,056 articles in 5 infectious diseases journals cited 166,650 items. Two random samples were drawn: one (n = 1,060) from the total set of citations and one (n = 1,060) from the citations to journal articles. For each sample citation, publication type and date, age of cited item, and inclusion of uniform resource locator (URL) were collected. For each item in the cited journal articles sample, journal title, publication date, and age of the cited article were collected. Bradford zones were used for further analysis.Results:
Journal articles (91%, n = 963) made up the bulk of cited items, followed by miscellaneous items (4.6%, n = 49). Dates of publication for cited items ranged from 1933–2010 (mean = 2001, mode = 2007). Over half (50.2%, n = 483) of cited journal articles were published within the previous 5 years. The journal article citations included 358 unique journal titles.Discussion:
The citations to current and older publications in a range of disciplines, heavy citation of journals, and citation of miscellaneous and government documents revealed the depth and breadth of resources needed for the study of infectious diseases.Highlights
- Literature on infectious diseases is multidisciplinary, encompassing medical specialties, public health, and the medical sciences.
- Infectious disease publications cite journal articles more than 90% of the time. Cited journal articles greatly range in age at citation: more than a quarter were over 10 years old.
- Infectious disease citation patterns resemble clinical medicine citation patterns more than public health citation patterns.
Implications
- Infectious disease professionals need access to general medicine titles as well as infectious disease, immunology, virology, microbiology, and public health literature.
- Librarians serving infectious disease researchers and practitioners should provide access to older materials, especially journal back files, to support the cyclical needs of their patrons.
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Ann Barrett Melissa Helwig Karen Neves 《Journal of the Medical Library Association》2016,104(2):118-124
Objectives
This study describes the literature of hospital pharmacy and identifies the journals most commonly cited by authors in the field, the publication types most frequently cited, the age of citations, and the indexing access to core journals. The study also looks at differing citation practices between journals with a wide audience compared to a national journal with a focus on regional issues and trends in the field.Method
Cited references from five discipline-specific source journals were collected and analyzed for publication type and age. Two sets were created for comparison. Bradford''s Law of Scattering was applied to both sets to determine the most frequently cited journals.Results
Three-quarters of all cited items were published within the last 10 years (71%), and journal articles were the most heavily cited publication type (n=65,760, 87%). Citation analysis revealed 26 journal titles in Zone 1, 177 journal titles in Zone 2, and the remaining were scattered across 3,886 titles. Analysis of a national journal revealed Zone 1 comprised 9 titles. Comparison of the 2 sets revealed that Zone 1 titles overlapped, with the exception of 2 titles that were geographically focused in the national title.Conclusion
Hospital pharmacy literature draws heavily from its own discipline-specific sources but equally from core general and specialty medical journals. Indexing of cited journals is complete in PubMed and EMBASE but lacking in International Pharmaceutical Abstracts. Gray literature is a significant information source in the field. 相似文献8.
Ryan S. Rafferty 《Journal of the Medical Library Association》2013,101(3):213-217
Objectives:
The research sought to determine if first-year medical students consulted and cited resources specifically highlighted during library instructional sessions.Methods:
Students attended a library resources instructional session. Resources that pertained to the students'' assignment were demonstrated and discussed. The students created a report including citations from relevant literature. The citations were analyzed and categorized as: a resource discussed at the instructional session, a resource found on the course LibGuide, a library resource, course material, or some other resource. All citations were subcategorized as print or electronic.Results:
Three years (2008–2011) of data analyzing 2,983 citations showed that 49.55% of all citations were from resources discussed during library instructional sessions; 21.86% came from resources with links on the course LibGuide; 77.51% were from library resources; and 90.68% came from electronic resources.Conclusion:
Students cited resources specifically highlighted during library instructional sessions for their assignments. The percentage of all citations coming from resources highlighted during the instructional sessions or found on the course LibGuide indicates that library instruction had an impact on the students'' work.Highlights
- Review of the literature shows that instruction about library resources accompanied by clear guidelines on scholarly research methods and resources provided by course instructors have the biggest impact on the quality of cited materials in student bibliographies.
- Graduate medical students cited library resources more frequently than nonlibrary resources for their assigned coursework.
- Graduate medical students cited materials and resources specifically highlighted during library instructional sessions for their assigned coursework.
Implications
- Instruction about library resources tailored to medical students'' assignments impacts the resources that the students consult and cite for their assignments.
- Using the information gathered from citation analysis to modify teaching plans can impact the effectiveness of library instructional sessions.
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Suzanne F Grefsheim Susan C Whitmore Barbara A Rapp Jocelyn A Rankin Rex R Robison Candace C Canto 《Journal of the Medical Library Association》2010,98(2):147-156
Background:
To encourage evidence-based practice, an Annals of Internal Medicine editorial called for a new professional on clinical teams: an informationist trained in science or medicine as well as information science.Objectives:
The study explored the effects of informationists on information behaviors of clinical research teams, specifically, frequency of seeking information for clinical or research decisions, range of resources consulted, perceptions about access to information, confidence in adequacy of literature searches, and effects on decision making and practice. It also explored perceptions about training and experience needed for successful informationists.Methods:
Exploratory focus groups and key interviews were followed by baseline and follow-up surveys conducted with researchers and clinicians receiving the service. Survey data were analyzed with Pearson''s chi-square or Fisher''s exact test.Results:
Comparing 2006 to 2004 survey responses, the researchers found that study participants reported: seeking answers to questions more frequently, spending more time seeking or using information, believing time was less of an obstacle to finding or using information, using more information resources, and feeling greater satisfaction with their ability to find answers. Participants'' opinions on informationists'' qualifications evolved to include both subject knowledge and information searching expertise.Conclusion:
Over time, clinical research teams with informationists demonstrated changes in their information behaviors, and they valued an informationist''s subject matter expertise more.Highlights
- Informationist involvement in traditional team activities—going on rounds and searching and critically evaluating the literature—increased over time.
- As the relationship between a clinical team and informationist developed, activities expanded to include projects such as development of wikis, databases, and websites.
- Clinical teams came to view subject knowledge as key to an informationist''s preparation; however, their expertise as information scientists was valued most highly.
- “Initiative,” approaching research staff in their workplace, was the one personal trait focus group participants agreed on as most desirable for an informationist.
- When first introduced to the concept, researchers cited customization of services to team needs as a major benefit.
Implications
- To assure a successful informationist program, libraries must be prepared to commit time and money.
- Whether informationists or not, librarians should be prepared to support users'' increased need for genetics and molecular biology information.
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T. Elizabeth Workman Marcelo Fiszman John F Hurdle Thomas C Rindflesch 《Journal of the Medical Library Association》2010,98(4):273-281
Objective:
This paper examines the development and evaluation of an automatic summarization system in the domain of molecular genetics. The system is a potential component of an advanced biomedical information management application called Semantic MEDLINE and could assist librarians in developing secondary databases of genetic information extracted from the primary literature.Methods:
An existing summarization system was modified for identifying biomedical text relevant to the genetic etiology of disease. The summarization system was evaluated on the task of identifying data describing genes associated with bladder cancer in MEDLINE citations. A gold standard was produced using records from Genetics Home Reference and Online Mendelian Inheritance in Man. Genes in text found by the system were compared to the gold standard. Recall, precision, and F-measure were calculated.Results:
The system achieved recall of 46%, and precision of 88% (F-measure = 0.61) by taking Gene References into Function (GeneRIFs) into account.Conclusion:
The new summarization schema for genetic etiology has potential as a component in Semantic MEDLINE to support the work of data curators.Highlights
- Semantic MEDLINE streamlines information retrieval by succinctly expressing the meaning of sometimes complicated text and summarizing output according to a user''s needs.
- Semantic MEDLINE identifies genes noted in biomedical text as associated with a disease process.
- Semantic MEDLINE can potentially simplify secondary database curation.
Implications
- Library information retrieval services can potentially benefit from automated applications such as Semantic MEDLINE.
- Use of such automated applications can facilitate the library''s work in interdepartmental collaborative endeavors, thus reinforcing the library''s core value in its parent institution.
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Objective: The research analyzes usage of a major biomedical library''s pre-1993 print journal collection.Methodology: In July 2003, in preparation for a renovation and expansion project, the Biomedical Library at the University of California, San Diego, moved all of its pre-1993 journal volumes off-site, with the exception of twenty-two heavily used titles. Patrons wishing to consult one of these stored volumes could request that it be delivered to the library for their use. In the spring of 2006, an analysis was made of these requests.Results: By July of 2006, 79,827 journal volumes published in 1992 or earlier had been requested from storage. The number of requests received declined with age of publication. The usage distribution exhibited a “long tail”: 50% of the 79,827 requests were for journal volumes published before 1986. The availability of electronic access dramatically reduced the chance that corresponding print journal volumes would be requested.Conclusions: The older biomedical print journal literature appears to be of continued value to the biomedical research community. When electronic access was provided to the older literature, demand for older print volumes declined dramatically.
Highlights
- Analysis of requests for stored biomedical journal volumes published prior to 1993 indicates that older biomedical journal literature receives substantial use: during this 3-year study, there were nearly 80,000 requests for journal volumes published in 1992 or earlier, with half the requests for volumes published from 1986–1992 and 40% of the request for volumes published from 1970–1985. These results indicate that retaining older print volumes, or providing easy access to the older literature through electronic journals or other means, will likely be required to meet user information needs.
- Use of older journal volumes varies by title and by user population, and a small number of journal titles were responsible for most of the use.
- Requests for older print biomedical journal titles dropped significantly when electronic access became available.
Implications
- Biomedical libraries should carefully consider implications of eliminating on-site access to older journal literature for users and budgets.
- Removing access to older journal literature may result in higher demand for interlibrary loan and document delivery services.
- Biomedical libraries can safely substitute reliable electronic access to older literature to meet ongoing needs for this information, thereby creating space for other purposes.
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Ruth Holst Carla J. Funk Heidi Sue Adams Margaret Bandy Catherine Mary Boss Beth Hill Claire B. Joseph Rosalind K. Lett 《Journal of the Medical Library Association》2009,97(4):285-292
Objectives:
The research objectives were to (1) describe the current and future roles of hospital librarians and the challenges they face and (2) find evidence supporting the hypothesis that librarians are essential to hospitals in achieving the organizations'' mission-critical goals.Method:
The authors used results from a previous research study that identified the five organizational mission-critical goals important to hospital administrators and then searched the literature and solicited examples from hospital librarians to describe the librarian''s role in helping hospitals achieve these goals.Results:
The literature supports the hypothesis that hospital librarians play important roles in the success of the hospital. Librarians support quality clinical care, efficient and effective hospital operations, continuing education for staff, research and innovation, and patient, family, and community health information needs.Conclusion:
Hospital librarians fulfill many mission-critical roles in today''s hospital, providing the right information at the right time in a variety of ways to enhance hospital and medical staff effectiveness, optimize patient care, improve patient outcomes, and increase patient and family satisfaction with the hospital and its services. Because hospital librarians and their services provide an excellent return on investment for the hospital and help the hospital keep its competitive edge, hospital staff should have access to the services of a professional librarian.Highlights
- A review of the literature supports the hypothesis that services of the professional librarian result in:
- enhanced staff effectiveness,
- optimized patient care,
- improved patient outcomes, and
- increased patient and family satisfaction with the hospital and its services.
Implications
- Because hospital librarians and their services provide an excellent return on investment for the hospital and help the hospital keep its competitive edge, hospital staff should have access to the services of a professional librarian.
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Gurpreet K Rana Doreen R Bradley Stanley J Hamstra Paula T Ross Robert E Schumacher John G Frohna Hilary M Haftel Monica L Lypson 《Journal of the Medical Library Association》2011,99(1):77-81
Objective:
The objective of this study was to validate an assessment instrument for MEDLINE search strategies at an academic medical center.Method:
Two approaches were used to investigate if the search assessment tool could capture performance differences in search strategy construction. First, data from an evaluation of MEDLINE searches from a pediatric resident''s longitudinal assessment were investigated. Second, a cross-section of search strategies from residents in one incoming class was compared with strategies of residents graduating a year later. MEDLINE search strategies formulated by faculty who had been identified as having search expertise were used as a gold standard comparison. Participants were presented with a clinical scenario and asked to identify the search question and conduct a MEDLINE search. Two librarians rated the blinded search strategies.Results:
Search strategy scores were significantly higher for residents who received training than the comparison group with no training. There was no significant difference in search strategy scores between senior residents who received training and faculty experts.Conclusion:
The results provide evidence for the validity of the instrument to evaluate MEDLINE search strategies. This assessment tool can measure improvements in information-seeking skills and provide data to fulfill Accreditation Council for Graduate Medical Education competencies.Highlights
- The University of Michigan MEDLINE Search Assessment tool can be used to assess search skills in residency education.
- Five elements were identified as critical elements in the development of an effective MEDLINE search strategy: inclusion of all search concepts, appropriate use of Medical Subject Headings, appropriate use of search limits, successful combination of all concepts, and search efficiency.
Implications
- This validated assessment tool can serve as an effective means to measure improvements in residents'' information-seeking skills and provide data to fulfill Accreditation Council for Graduate Medical Education competencies.
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Julie G. Kosteniuk Debra G. Morgan Carl K. D'Arcy 《Journal of the Medical Library Association》2013,101(1):32-37
Objectives:
The research determined (1) the information sources that family physicians (FPs) most commonly use to update their general medical knowledge and to make specific clinical decisions, and (2) the information sources FPs found to be most physically accessible, intellectually accessible (easy to understand), reliable (trustworthy), and relevant to their needs.Methods:
A cross-sectional postal survey of 792 FPs and locum tenens, in full-time or part-time medical practice, currently practicing or on leave of absence in the Canadian province of Saskatchewan was conducted during the period of January to April 2008.Results:
Of 666 eligible physicians, 331 completed and returned surveys, resulting in a response rate of 49.7% (331/666). Medical textbooks and colleagues in the main patient care setting were the top 2 sources for the purpose of making specific clinical decisions. Medical textbooks were most frequently considered by FPs to be reliable (trustworthy), and colleagues in the main patient care setting were most physically accessible (easy to access).Conclusions:
When making specific clinical decisions, FPs were most likely to use information from sources that they considered to be reliable and generally physically accessible, suggesting that FPs can best be supported by facilitating easy and convenient access to high-quality information.Highlights
- Medical textbooks were the most popular information source for family physicians'' (FPs'') clinical decision-making purposes, and medical journals were the most popular information source for the purpose of updating FPs'' general medical knowledge.
- FPs considered medical textbooks to be the most reliable (trustworthy) source, colleagues the most physically accessible, and continuing medical education the most relevant and intellectually accessible.
- The lowest ranked information sources across all four attributes were personal digital assistants, mental health professionals, pharmaceutical sales representatives, and other decision aids.
Implications
- The most popular information sources for clinical decision-making purposes among FPs were sources characterized as reliable and generally physically accessible.
- This study suggests the need for further research into interventions that target information access barriers in FPs'' practice settings and the promotion of reliable evidence for FPs'' clinical decision-making purposes.
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Objective:
The research sought to establish a rubric for evaluating evidence-based medicine (EBM) point-of-care tools in a health sciences library.Methods:
The authors searched the literature for EBM tool evaluations and found that most previous reviews were designed to evaluate the ability of an EBM tool to answer a clinical question. The researchers'' goal was to develop and complete rubrics for assessing these tools based on criteria for a general evaluation of tools (reviewing content, search options, quality control, and grading) and criteria for an evaluation of clinical summaries (searching tools for treatments of common diagnoses and evaluating summaries for quality control).Results:
Differences between EBM tools'' options, content coverage, and usability were minimal. However, the products'' methods for locating and grading evidence varied widely in transparency and process.Conclusions:
As EBM tools are constantly updating and evolving, evaluation of these tools needs to be conducted frequently. Standards for evaluating EBM tools need to be established, with one method being the use of objective rubrics. In addition, EBM tools need to provide more information about authorship, reviewers, methods for evidence collection, and grading system employed.Highlights
- Eleven of the fourteen previous evidence-based medicine (EBM) tool evaluations were based on clinicians evaluating tools based on their perception of the products'' ability to answer a clinical question.
- EBM tools'' evidence summaries are not updated as often as products claim.
- Although many EBM tools claim to be evidence based, only 74% of the 70 evaluated treatment summaries included graded evidence.
Implications
- To offer the best tools for users, medical libraries should evaluate EBM resources regularly, including the quality of the evidence provided.
- Medical librarians have a role to play in evaluating the quality of EBM products and can develop assessment tools to aid in this evaluation.
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Dixie A Jones Jean P Shipman Daphne A Plaut Catherine R Selden 《Journal of the Medical Library Association》2010,98(3):243-249
Objectives:
The Medical Library Association (MLA)/National Library of Medicine (NLM) Joint Electronic Personal Health Record Task Force examined the current state of personal health records (PHRs).Methods:
A working definition of PHRs was formulated, and a database was built with fields for specified PHR characteristics. PHRs were identified and listed. Each task force member was assigned a portion of the list for data gathering. Findings were recorded in the database.Results:
Of the 117 PHRs identified, 91 were viable. Almost half were standalone products. A number used national standards for nomenclature and/or record structure. Less than half were mobile device enabled. Some were publicly available, and others were offered only to enrollees of particular health plans or employees at particular institutions. A few were targeted to special health conditions.Conclusions:
The PHR field is very dynamic. While most PHR products have some common elements, their features can vary. PHRs can link their users with librarians and information resources. MLA and NLM have taken an active role in making this connection and in encouraging librarians to assume this assistance role with PHRs.Highlights
- A variety of personal health records (PHRs) exist with some tied to medical health records and others offered as standalone products.
- Librarians can be connected to PHR users through inclusion of an assistance statement in PHRs.
- PHRs offer librarians another means of providing consumers with quality health information.
Implications
- PHR user support is a new role for medical librarians.
- Medical librarians need to be proactive in their communities to educate consumers about PHRs.
- Given the dynamic nature of this market, medical librarians should make a concerted effort to stay abreast of trends in this area.
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Objective:
The investigation provides recommendations for establishing institutional collection guidelines and policies that protect the integrity of the historical record, while upholding the privacy and confidentiality of those who are protected by Health Insurance Portability and Accountability Act (HIPAA) or professional ethical standards.Methods:
The authors completed a systematic historical investigation of the concepts of collection integrity, privacy, and confidentiality in the formal and informal legal and professional ethics literature and applied these standards to create best practices for institutional policies in these areas.Results:
Through an in-depth examination of the historical concepts of privacy and confidentiality in the legal and professional ethics literature, the authors were able to create recommendations that would allow institutions to provide access to important, yet sensitive, materials, while complying with the standards set by HIPAA regulations and professional ethical expectations.Conclusion:
With thoughtful planning, it is possible to balance the integrity of and access to the historical record of sensitive documents, while supporting the privacy protections of HIPAA and professional ethical standards. Although it is theorized that collection development polices of institutions have changed due to HIPAA legislation, additional research is suggested to see how various legal interpretations have affected the integrity of the historical record in actuality.Highlights
- Ethical standards call upon special collections professionals to collect and provide access openly, while protecting individual privacy.
- A systematic historical investigation of legal and professional ethics literature can lead to standard best practices that address issues of privacy and access.
Implications
- Special collections professionals can establish guidelines that preserve the historical record and maintain collection integrity and access, while adhering to privacy legislation and ethical concerns.
- The framework suggested here can be used to write a collection development and access policy that complies with the Health Insurance Portability and Accountability Act.
- Librarians who interact regularly with hospital administrators or researchers using patient data need to be aware of the ethical and legal issues involved in patient data retention.