Ethnocultural community leaders' views and perceptions on biobanks and population specific genomic research: a qualitative research study     

Godard B  Ozdemir V  Fortin M  Egalité N 《Public understanding of science (Bristol, England)》2010,19(4):469-485

Substantial investments were made in population based biobanks over the past decade. Ethnocultural community members are both sponsors and beneficiaries of biobanks. In addition, the success of biobank projects depends on community support and participation. Yet there are few empirical data on views, perceptions and interests of ethnocultural communities on biobanks. This silent gap in genomics, ethics and policy literatures has to be addressed. We conducted a qualitative research study with in-depth interviews of ethnocultural community leaders (e.g., members of the Canadian Parliament, school commissioners) on their perspectives concerning population specific genomics research and biobanks. An equal partnership model where public is not only informed, but also involved in decision-making processes was perceived as an essential democratic requisite. These empirical data on ethnocultural community leaders' views, interests and perceptions identify several key socio-cultural and ethical factors that can be decisive for effective and sustainable community involvement in biobanks.  相似文献   

Understanding shifts in students’ academic motivation across a school year: the role of teachers’ motivating styles and need-based experiences     

Cohen  Rinat  Katz  Idit  Aelterman  Nathalie  Vansteenkiste  Maarten 《European Journal of Psychology of Education - EJPE》2023,38(3):963-988

European Journal of Psychology of Education - Students’ adaptive motivation to study tends to decrease over time. However, the reasons for this decline are not fully understood. Drawing on...  相似文献