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儿童研究不是一个纯粹的方法或技术应用问题,它同时是一个非常重要的伦理问题。特别是以身心发展水平较低的年幼儿童为对象的研究,因其对象的特殊性会面临更复杂的道德问题。本文结合国内外有关研究,在解析儿童研究中的道德内涵的基础上,试图建构儿童研究中应遵循的道德规范,同时对研究者在研究中如何保持良好的道德风范作了初步探讨。 相似文献
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Dag Elgesem 《Ethics and Information Technology》2002,4(3):195-203
In the analysis of the ethicalproblems of online research, there is much tobe learned from the work that has already beendone on research ethics in the socialsciences and the humanities. I discuss thestructure of norms in the Norwegian ethicalguidelines for research in the social scienceswith respect to their relevance for the ethicalissues of Internet research. A four-stepprocedure for the ethical evaluation ofresearch is suggested. I argue that eventhough, at one level, the problems of onlineresearch are very similar to those we find intraditional areas of social scientificresearch, there still are some issues that areunique to research online. A general model forthe analysis of privacy and data protection issuggested. This model is then used tocharacterize the special problems pertaining tothe protection of privacy in online contexts,and to argue that one cannot assume a simpledistinction between the private and the publicwhen researching in such contexts. 相似文献
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Lisa K. Maguire Bronagh Byrne Susan Kehoe 《International Journal of Research & Method in Education》2018,41(1):89-103
This paper provides an introduction to issues surrounding the participation rights of young people in research and the implications of their growing involvement in research as well as providing a discourse on the ethical implications related to consent. The unique contribution of this paper is that it considers children’s rights in respect to the increasing opportunities for young people to take part in evaluation research. The aim of this paper, therefore, is to acknowledge the growing involvement for young people in research and the implications of ensuring that their rights of participation are respected. Secondly, we will consider the children’s rights legislation and our obligations as researchers to implement this. Finally, we will explore consent as an issue in its own right as well as the practicalities of accessing participants. This paper will postulate that any research about young people should involve and prioritize at all stages of the research process; including participation in decision-making. We conclude by identifying five key principles, which we believe can help to facilitate the fulfilment of post-primary pupils’ ability to consent to participate in trials and evaluative research. 相似文献
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Judith Loveridge Sue Cornforth 《International journal of qualitative studies in education》2013,26(4):454-471
The processes of gaining consent for educational and social research with children and young people have become increasingly complex. A variety of influences contribute to this complexity. In this paper, we use post-structural concepts to focus on the influence of three co-existing and interweaving perspectives: protectionist, participatory and post-structural. Each of these foregrounds different issues in the process of gaining consent for research involving children or young people. We argue for the need to be cognisant of the interplay between the three different perspectives, and what is effected by each. We conclude by proposing a three-overlapping-points-of-entry approach to thinking about research involving children. Our hope is that by sharing the ideas that we have had, we will contribute to those ongoing conversations in which others are trying to re-think consent within the broader framework of why and how do we do research with children and young people. 相似文献
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Edwin Black 《Quarterly Journal of Speech》2013,99(4):361-374
A basic factor of Chaim Perelman's rhetorical theory is the concept of the universal audience. Unfortunately, the concept of the universal audience, which follows in the tradition of Rousseau's general will and Kant's categorical imperative, is open to many of the same criticisms leveled against the general will and the categorical imperative. 相似文献
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徐伟康 《武汉体育学院学报》2020,54(12):40
“同意”原则是个人数据处理的基本规则,体现在各国数据保护立法和国际性文件中,也被国际体育组织所遵循,背后体现数据自决而非他决的理念。但是运动员特殊的身份属性导致其难以控制和支配个人数据,在与体育组织博弈中的非平等协商地位也导致其难以就数据处理作出自由有效的同意,同时“同意”原则一定程度上也阻碍体育大数据等新兴产业的发展。运动员的数据保护需要突破传统“同意”模式,构建数据处理中“同意”原则的否弃机制,引入平衡测试和数据访问权、被遗忘权,使数据处理者的行为规范更具合理性。 相似文献
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何霞 《安徽广播电视大学学报》2010,(4):31-35
知情同意是人体试验的关键问题,对于受试者利益的保护具有重要意义。在规范人体试验时,我国法律对知情同意有相关规定,但存在一定的缺失和不足。在研究者告知义务方面,对于研究者的说明事项规范有待改进。在受试者同意方面,将行为能力制度运用于受试者的同意能力不适当,有建立＂医事上同意能力制度＂的必要,且受试者的同意能力应当依据个案判断。知情同意实践中,弱势群体之一孕妇参与人体试验在我国存在立法缺失,应予以补充和完善。 相似文献
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知情同意是保护患者和医学实验中人体受试者权利的重要手段.自20世纪中期以来,越来越多的国家开始重视在医学治疗中实行知情同意的制度.如何在医学出版中做到知情同意,最大限度地保护患者或人体受试者的权利,是医学出版界的重要课题. 相似文献
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Iria Giuffrida Alex Hall 《British journal of educational technology : journal of the Council for Educational Technology》2023,54(6):1587-1603
Technology integration in higher education (HE) has brought immense innovation. While research is investigating the benefits of leveraging, through learning analytics, the data created by the greater presence of technology in HE, it is also analysing the privacy implications of vast universes of data now at the fingertips of HE administrators. This paper argues that student privacy challenges linked to technology integration occur not only within but also beyond learning environments, namely at the enterprise level. By analysing the UK and US legal frameworks surrounding how HE institutions respond to parents demanding disclosure of their adult children's personal data in the event of mental health crises, this paper offers an example of real and complex privacy issues, often overlooked by interdisciplinary inquiry, that exist in the ‘interstitial space’ between HE technology and privacy law. The purpose of conducting a comparative analysis was to demonstrate that countries with different privacy regimes are similarly ill-equipped to address certain student privacy issues at the HE enterprise level, leaving HEIs exposed to potential litigation/regulatory risks. The contribution of this work is to invite greater interdisciplinary awareness of, and inquiry into, student privacy beyond learning environments. 相似文献