Ethnocultural community leaders' views and perceptions on biobanks and population specific genomic research: a qualitative research study |
| |
| Authors: | Godard Béatrice Ozdemir Vural Fortin Marilyn Egalité Nathalie |
| |
| Institution: | Department of Preventive and Social Medicine, University of Montreal. beatrice.godard@umontreal.ca |
| |
| Abstract: | Substantial investments were made in population based biobanks over the past decade. Ethnocultural community members are both sponsors and beneficiaries of biobanks. In addition, the success of biobank projects depends on community support and participation. Yet there are few empirical data on views, perceptions and interests of ethnocultural communities on biobanks. This silent gap in genomics, ethics and policy literatures has to be addressed. We conducted a qualitative research study with in-depth interviews of ethnocultural community leaders (e.g., members of the Canadian Parliament, school commissioners) on their perspectives concerning population specific genomics research and biobanks. An equal partnership model where public is not only informed, but also involved in decision-making processes was perceived as an essential democratic requisite. These empirical data on ethnocultural community leaders' views, interests and perceptions identify several key socio-cultural and ethical factors that can be decisive for effective and sustainable community involvement in biobanks. |
| |
| Keywords: | |
| 本文献已被 PubMed 等数据库收录！ |
|
