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Gathering the views of children and young people with ASD: a systematic literature review
Authors:Beverley Tyrrell  Kevin Woods
Abstract:According to the United Nations Convention on the Rights of the Child, children have a right to have their views listened to, and studies have shown that doing so can improve their motivation and self‐esteem. Accordingly, this systematic literature review sought to investigate how the views of children with an autism spectrum disorder (ASD), who have difficulties with social communication, may be gathered. Searches of electronic databases yielded 20 studies which met the criteria for inclusion. Semi‐structured interviews (SSIs) were popular, but there is tentative evidence that these are better suited to older, or more academically able, participants. Some of the evidence suggests adaptations to make SSIs more accessible to young people with ASD. Initial evidence has also emerged regarding the suitability of focus groups and electronic diaries. More focused evaluation by researchers of the suitability of their chosen data‐gathering methods for participants with ASD would allow broader conclusions to be drawn.
Keywords:autism  child  views  review  participation
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